In Memory of Sam Berns

In Memory of Sam Berns

In Memory of Sam BernsPosted on January 12th, 2014 by Dr. Francis CollinsThis weekend, in a heartbreaking phone call from his parents, I learned of the death of Sam Berns, a courageous young man with Hutchinson-Gilford Progeria Syndrome. Sam’s parents, Scott Berns and Leslie Gordon, both physicians, introduced me to Sam more than a decade ago. That fortuitous circumstance allowed the initiation of a clinical trial for progeria kids (including Sam), just four years after the discovery of the genetic cause. Sam was featured as the narrator of a recent television documentary, “Life According to Sam,” which premiered on HBO this fall, recounting the amazing story of this medical research adventure. In November 2011, he presented me with the “SAM” (Science And Medicine) award from the Progeria Research Foundation.

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